Dapting, Reorganizing and Reinterpeting: A Systemic Reading of the Diagnosis of Autism Spectrum Disorden in the Family

Abstract

This study aimed to analyze how family structure, dynamics, and beliefs are involved in the daily experience of caregiving and adaptation in Mexican families with a son or daughter diagnosed with Autism Spectrum Disorder in Nayarit. A qualitative methodology was used, with an exploratory scope and thematic content analysis based on the results obtained. Semi-structured interviews, field diaries, and observation logs were conducted for data collection. A convenience sample consisted of 13 participants. The categories obtained were: family structure, dynamics, and beliefs. The new reconfigurations brought about by the diagnosis of ASD can be observed: roles, responsibilities, agreements, negotiations, and the redefinition of the diagnosis. This raises the need to approach this diagnosis from a comprehensive perspective that combines individual, family, and social factors